Lyme Disease

The Midwest Lyme Foundation is a dedicated group of volunteers who strive to provide community awareness, information, and physician training for the treatment and management of Lyme Disease in the Midwest.

 

We recommend watching Under Our Skin, an award winning documentary about Lyme Disease. Attend a screening.

 

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The Human Race

The Midwest Lyme Foundation is proud to sponsor the The Human Race, a 5k walk/run being held on April 16, 2011 at McHenry’s industrial park on Prime Parkway.

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Getting the proper diagnosis and treatment can be the difference between a temporary illness or a lifelong struggle with a complicated chronic illness. The Midwest Lyme Foundation raises money to provide training to doctors in the midwest. These doctors go through the ILADS (International Lyme and Associated Diseases Society) training program to become "Lyme Literate". The Lyme Disease Association has compiled a list of LLMD's (Lyme Literate Medical Doctors). Finding a LLMD in the midwest that is available to take on more patients can be challenging. Our mission is to make the medical treatment of Lyme disease and it's co-infections available to all who are suffering.
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The Midwest Lyme Foundation was formed in late 2009 in response to the urgent need to get doctors in the midwest trained to be "lyme literate".
 
Many of us have been misdiagnosed with other diseases or told that "there's nothing wrong". To make matters worse, when the correct diagnosis is made, most doctors in this area have had no experience treating this complex disease and treatment is inadequate. Many ticks carry co-infections, which can complicate treatment. Since there is no straightforward protocol to cure chronic lyme disease, treatment varies from patient to patient.
Proper diagnosis at the onset can prevent chronic lyme which is why we believe in educating the public to recognize lyme symptoms and see a lyme literate doctor as soon as possible. Training doctors is also critical to avoid chronic lyme, which is debilitating and sometimes fatal.

We believe we can make life changing differences by getting sick people the proper treatment.
 

Prevention

How can I protect myself and my family against Lyme disease?

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Symptoms

What are the Symptoms of Lyme disease?

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Misdiagnosis

Few cases are reported, and many people are misdiagnosed.

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Testing

Lyme disease tests can be unreliable.

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About Ticks

What is a tick?

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Chronic Lyme Disease

Even with all of the technological and medical advancements our world has achieved, our universe, environment and our bodies still hold on to mysteries unsolved. Lyme disease is one such mystery. While some doctors believe it's easy to treat, others see it as a chronic condition that is elusive, insidious and relentless. To unravel the mystery of Lyme disease, there are three questions that need to be asked. Does chronic Lyme disease exist? How do I know if I have chronic Lyme disease? Is there a cure for chronic Lyme disease?

Does chronic Lyme disease exist?

  • Lyme disease is caused by the spirochete, Borrelia burgdorferi. Spirochetes are distinguished by their spiral shape, allowing them to drill into deep tissue, such as muscle and connective tissue. This allows the bacteria to hide from antibiotics in the blood.
  • Most ticks that carry Lyme disease also carry other diseases. These co-infections can complicate the effectiveness of antibiotic treatment for Lyme disease.
  • B. burgdorferi can also resist treatment by changing into a spheroplast (cyst) shape.
  • When comparing its growth rate to strep throat, B. burgdorferi is very slow growing, with a doubling time of 12-18 hours as opposed to 20-30 minutes for strep. Since most antibiotics are only effective against bacteria when they are dividing, this longer doubling time necessitates longer treatment.

How do I know if I have chronic Lyme disease?

  • There is no definitive Lyme disease test that is 100% reliable. However, the bulls-eye rash is definitive for the infection. Not all will get a bulls-eye rash and those that do, will have it for only a short period of time.
  • A clinical diagnosis is when a Lyme doctor looks at symptoms, medical history and a physical examination instead of relying only on laboratory tests. This is the preferred method since current testing methods can produce false negatives.
  • Lyme disease travels throughout the body, affecting any and all systems. This causes misdiagnosis because symptoms come and go.
  • Of the 37 known species of Borrelia, 12 are Lyme related. Different strains will produce different symptoms. Only a Lyme specialist should determine a Lyme disease diagnosis.

Is there a cure for chronic Lyme disease?

  • An early diagnosis and proper treatment can prevent Lyme disease from becoming a chronic condition.
  • Testing and treatment for other tick-borne infections is required for effective Lyme disease treatment.
  • Since there are many different strains of Lyme disease, combinations of co-infections and individual immune systems, treatment will vary from patient to patient. Building the immune system with proper diet and supplements, as well as antibiotic therapy in combination with other alternative treatments can get you on the road to recovery.

While these questions may not have yes or no answers, our hope is that you have an understanding of Lyme disease and a direction to go from here.

Disclaimer

The Midwest Lyme Foundation (MLF) and it's website is intended as a resource for people interested in learning about Lyme disease and other tick-borne illnesses. The information presented is for informational purposes only and is not intended as legal or medical advice regarding the treatment of any symptoms or disease. You should not use any information on the site to take the place of advice from your personal healthcare provider or other professional. Links to other sites are provided to facilitate research only and information on those sites is the opinion of those who publish the sites and is not necessarily that of Midwest Lyme Foundation.